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Dysautonomia FoundationPhilanthropy
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Dysautonomia Foundation, IncDysautonomia Foundation 57 years of care, treatment, research and advocacy for the FD...
MoreDysautonomia Foundation, IncDysautonomia Foundation 57 years of care, treatment, research and advocacy for the FD populationThe Dysautonomia Foundation is a nonprofit organization supporting the best possible medical care and scientific research for the benefit of people afflicted with FD. The Foundation also conducts social service and public awareness programs for the benefit of the FD community and for those in the general population who may be at risk for FD.The Dysautonomia Foundation supports research studies into FD and the FD gene. Basic scientific research and clinical medical research regarding FD is currently being supported at a number of prestigious hospitals and universities.The Dysautonomia Foundation provides a continual flow of information to families, the medical community and other lay and professional persons who request medical, educational or promotional material concerning FD.Advocating for the FD Population The Dysautonomia Foundation works with the medical community and works with the government to further the concerns of people with FD. We work with the medical community to educate doctors about FD, to let them know that they can call on our experts for assistance in treating FD patients, and to encourage medical governing bodies to recognize the need to require doctors to inform patients about the existence and risk of FD ( in 2004, due in part to our efforts, the American College of OB-GYNs, ACOG, published an opinion telling doctors to inform Ashkenazi Jewish patients about the risk of FD and the need to get tested for FD ). We also advocate on the government level to try to get states to recognize FD as a developmental disability so that FD patients can more easily obtain benefits / assistance for FD treatment, and to require insurance companies to provide coverage for the cost of genetic testing.Chicago. Buffalo Buffalo Grove. IL Dysautonomia Society of Great Britain Bernie Hattenbach. Norwalk. CT Less
Website: familialdysautonomia.org
Phone: (212) 279-1066
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315 W 39th St, #701 New York, NY 10018 2501.67 mi
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