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  1. Jan 12, 2022 · Scleroderma Research Foundation Chairman Luke Evnin tells PEOPLE Bob Saget was a dedicated board member after his sister's death and spent his life raising awareness for the disease

    • 3 min
    • Julie Mazziotta
  2. Jan 10, 2022 · How Death of His Sister Inspired Bob Saget’s Tireless Mission to Find Cure for Scleroderma. From directing a 1996 TV movie to serving on the board of the Scleroderma Research Foundation, Saget ...

  3. Jan 12, 2022 · Saget participated in a comedy benefit for the Scleroderma Research Foundation more than 30 years ago, before his sister was even diagnosed with the disease, after he was asked by the foundation's ...

  4. Jan 12, 2022 · As Bob Saget is remembered by his friends and co-stars, one memory that stands out is his commitment to finding a cure for scleroderma, a rare disease for which Saget was the most high-profile advocate. Saget, 65, died unexpectedly Jan. 9, on what would have been the 75th birthday of his late sister, Gay. Gay died in 1994 at the age of 47.

  5. Even before losing his sister to the disease in 1994, Bob Saget was a devoted champion for the scleroderma community. Beginning in 1991, he performed at—and later went on to be the host and producer of—SRF’s signature Cool Comedy • Hot Cuisine fundraising event, to help raise awareness and funds for medical research.

  6. Jan 13, 2022 · How Bob Saget Quietly Helped a 9-Year-Old Girl with Scleroderma Prior to His Death. Bob Saget was a tireless advocate for scleroderma research after his older sister died of the disease at age 47

  7. Jan 14, 2022 · Bob Saget, in a final interview with CBS Mornings, ... the comedian spoke about wanting to continue to raise awareness for scleroderma, the disease that took his sister in 1994: "Humor is the only ...

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