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The Myotonic Dystrophy Foundation has a comprehensive array of resources available for newly-diagnosed families, available via the Support & Care link on this website. Below are links to some of our most commonly requested resources: Order a Myotonic Dystrophy Toolkit; Join the Myotonic Dystrophy Family Registry; Download the Anesthesia Guidelines
Aug 20, 2024 · The State of the Foundation is Strong! The Myotonic Dystrophy Foundation was founded by families with DM seeking to help one another and to find a cure. Every day, we focus on helping families living with myotonic dystrophy by delivering comprehensive support resources, and driving research to accelerate the discovery of DM therapies.
Aug 20, 2024 · Although myotonic dystrophy (DM) currently has no treatment or cure, one of our priorities at the Myotonic Dystrophy Foundation (MDF) is to increase the knowledge and science available to any researcher or clinician seeking to uncover answers to their DM questions.
Myotonic Dystrophy Foundation 663 Thirteenth Street, Suite 100 | Oakland, CA 94612. Phone & Email. Toll Free (US only): 86-MYOTONIC (866-968-6642) Direct: 415-800-7777
Aug 20, 2024 · The Myotonic Dystrophy Foundation is the world’s largest myotonic dystrophy (DM) patient advocacy organization, connecting people living with DM in more than 80 countries around the world. What helps make this organization so meaningful is your role in it – your advocacy to advance “Community, Care, and a Cure” and your support of us ...
Aug 20, 2024 · Support International Myotonic Dystrophy Awareness Day on Sept. 15! Get the facts about DM and help garner the attention of the wider general public, policy makers, regulators, biopharmaceutical representatives, researchers, health care professionals, and anyone with an interest in changing the future of myotonic dystrophy.
Aug 20, 2024 · The Myotonic Dystrophy Foundation (MDF) facilitated the translation of Dr. Hans Steinert’s initial descriptions of patients with myotonic dystrophy. This work was originally published in Steinert’s native language German. The article was translated by Dr. Corinna Fehle, PhD and thereafter clinically reviewed by Dr. Benedikt Schoser, MD.
