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  1. www.myotonic.orgMyotonic Dystrophy Foundation

    MDF is the leading global advocate for patients and families affected by myotonic dystrophy (DM), a genetic disorder that causes muscle weakness and nerve problems. Learn about DM, clinical trials, clinical care, advocacy, awareness, and more.

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  3. www.myotonic.org › myotonic-dystrophy-foundationThe Myotonic Dystrophy Foundation Mission

    • Our Mission
    • Our 2021-2024 Strategic Plan
    • Our Background
    • What We Do
    • GeneratedCaptionsTabForHeroSec

    The mission of the Myotonic Dystrophy Foundation is Community, Care, and a Cure. 1. We support and connect the myotonic dystrophy community. 2. We provide resources and advocate for care. 3. We accelerate research toward treatments and a cure. The Myotonic Dystrophy Foundation (MDF) is the leading global advocate helping patients and families navig...

    See full list on myotonic.org

    On December 14, 2021 the MDF Board of Directors approved the 2021-2024 Strategic Plan. The plan introduces MDF’s updated Mission and Vision, our new Values, and the four key goal areas designed to help us strengthen our community, improve access to effective healthcare that meets the needs of individuals and families, eliminate barriers to drug dev...

    See full list on myotonic.org

    We created the Myotonic Dystrophy Foundation to enhance the quality of life of people living with myotonic dystrophy and to drive research focused on treatments and a cure. DM is an inherited disorder that can appear at any age and manifests differently in every person. There is currently no treatment or cure.

    See full list on myotonic.org

    Support & Education

    Today, we're the world's largest patient organization focused solely on myotonic dystrophy. We provide education and resources for those living with DM, and help community members find local support groups. We conduct outreach to raise awareness about DM in the medical community with a medical school roadshow. Other outreach activities include: 1. Myotonic Dystrophy Toolkit- a comprehensive packet of information and resources for newly-diagnosed families and their doctors 2. MDF Warmline- sta...

    Research

    The Myotonic Dystrophy Foundation is committed to advancing research and therapies. Read about the research we support.Some highlights of what we’re doing: 1. Supporting up-and-coming postdoctoral fellowships to expand the research base 2. Launching and managing the Myotonic Dystrophy Family Registry 3. Investing in target identification and drug screening 4. Supporting a robust clinical research network to increase the efficiency of testing new drug candidates 5. Determining the true prevale...

    Advocacy

    MDF advocates for legislation, research, and infrastructure initiatives that will advance our understanding of myotonic dystrophy, accelerate drug development, and improve diagnosis and care. We strive to raise visibility of myotonic dystrophy and people living with DM with key stakeholders in Congress, federal and state agencies, medical professionals, and the media. Here's how you can help.

    See full list on myotonic.org

    The Myotonic Dystrophy Foundation is the leading global advocate for people living with myotonic dystrophy, a rare genetic disorder. Learn about their mission, vision, values, and strategic plan to support, educate, and advance research for DM.

    See full list on myotonic.org

  4. www.myotonic.org › resources › current-studies-andCurrent Studies and Trials | Myotonic Dystrophy Foundation

    Find out about the latest research studies and trials for myotonic dystrophy type 1 and congenital myotonic dystrophy. Learn how to participate, contact study sites, and access resources from the Myotonic Dystrophy Foundation.

  5. www.myotonic.org › find-a-doctorFind a Doctor | Myotonic Dystrophy Foundation

    6 days ago · To meet that need, MDF offers the Find a Doctor Program, a constantly-expanding, community-generated list that features clinicians based in countries across the globe. By using the Find a Doctor tool, you are agreeing to the full terms & conditions. Click here to Find a Doctor. Facebook Twitter LinkedIn Email PrintFriendly.

  6. www.myotonic.org › find-a-doctor-mapMyotonic Dystrophy: Find a Doctor / Specialist

    5 days ago · Search for clinicians who understand and have experience with myotonic dystrophy (DM) in your area. Use the interactive map to filter by field of specialization, zoom in and out, and save to your Google Account.

  7. www.mobiledev.myotonic.org › find-supportMyotonic Dystrophy Support Programs | Myotonic Dystrophy ...

    Connect with other people living with myotonic dystrophy (DM) through online or local support groups, facilitated by trained volunteers. Learn about DM, share your experiences, and access resources from the world's largest DM patient advocacy organization.

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  9. www.myotonic.org › myotonic-dystrophy-support-careMyotonic Dystrophy Support & Care | Myotonic Dystrophy Foundation

    5 days ago · Learn about myotonic dystrophy (DM) symptoms, diagnosis, and management from the Myotonic Dystrophy Foundation. Find FAQs, videos, toolkits, and clinical care recommendations to improve your quality of life.

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