Search results
Aug 1, 2023 · Dilgen, husband of Faye Dilgen and father of daughter, Kalilla; son, Teague, and son, John Hudson, retired in September 2022 from the city Board of Education after a 30-year career. If you...
John Hudson Dilgen - EB. 12,607 likes · 88 talking about this. Help us bring awareness to the disease of Epidermolysis Bullosa (EB) and support John Hudson Dilgen and all the other children afflicted...
- An Isolating Disease
- Hope For A Pain-Free Future
- Staten Island Support
- GeneratedCaptionsTabForHeroSec
Doctors at NYU Langone Medical Center diagnosed Hudson, who was born without skin on his feet and without skin on his wrists, with EB at birth. “Doctors knew right away something was wrong,” Hudson’s mom, Faye Dilgen, tells PEOPLE. “It’s a genetic disease and my husband and I were both carriers but didn’t know it, which is often how it presents.” E...
Despite living with the cruel condition for 14 years, which the teen describes as “miserable,” Hudson has made it his mission to educate the public about EB and to work towards finding a cure. “I’m not scared to talk about it, I just hope to reach enough people and get them to care so that we can try to make a difference for others,” he says. “Most...
Faye and John are “extremely thankful” for the love they’ve received from their Staten Island community and from caring strangers, who recently helped raise over $137,000 to get Hudson a special bathtub necessary for his delicate skin. Through a GoFundMe page, the family is now able to afford a Microsilk tub to aid with the debridement of his skin ...
John Hudson Dilgen, 14, has epidermolysis bullosa (EB), a rare skin disease that causes blisters and pain. He advocates for research and shares his story of living with EB on People.com.
John Hudson Dilgen, who has a rare skin condition, gets a new home that is completely accessible and will change his life. Watch the emotional reveal by the Tunnel to Towers Foundation and Localish Inspire.
John Hudson Dilgen, who has a rare skin condition, gets a new home that is completely accessible and will change his life. Watch the emotional reveal by the Tunnel to Towers Foundation and Localish Inspire.
