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  1. willherndon.orgThe Will Herndon Fund for Juvenile Batten Disease Research

    A genetic disease called juvenile Batten that had no treatment, no cure and is always fatal. Missy and Wayne Herndon received this diagnosis in June of 2009 for their son Will. The Will Herndon Research Fund was created in August of that same year through a partnership with The Benson Family and Beyond Batten Disease Foundation with a vision of ...

    • Meet Will

      Will Herndon is an amazing, energetic 18-year-old boy who...

    • Get Involved

      The Will Herndon Research Fund ⁄ Get Involved. Immediate...

    • Events

      The Will Herndon Research Fund ⁄ Events-22. Immediate Byte....

    • HOPE on the Green

      The Will Herndon Research Fund ⁄ HOPE on the Green Spring...

    • HOPE Under the Stars

      The Herndon Family. #HOPE4Will Sponsor. Truluck’s The...

    • Mah Jongg

      For questions, please contact Jessica Kemp, director. Email:...

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    • The Will Herndon Fund for Juvenile Batten Disease Research
    • Nearly 700 Expected at Sept. 15 “HOPE Under the Stars Gala” in The ...
    • Faces of Hope: ABC13 Houston Features Will Herndon - Beyond Batten ...
    • Will Herndon - President - NewGrid, Inc. | LinkedIn

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  3. willherndon.org › will-herndon-fund › meet-willMeet Will - The Will Herndon Research Fund

    Will Herndon is an amazing, energetic 18-year-old boy who has a genuine love for his friends, family, and all animals. Will dreams of being a Zookeeper, calls his Goldendoodle Buster his best friend and loves playing with his little brothers, Steele (17) and Magnus (13) and his cousins most of all.

  4. beyondbatten.orgBeyond Batten Disease Foundation

    In 2009, Missy and Wayne Herndon founded The Will Herndon Research Fund (HOPE) to raise awareness and support for research into finding a cure for juvenile Batten disease. This effort began in honor of their son, Will, who was diagnosed at the age of 6.

  5. communityimpact.com › houston › the-woodlandsHOPE: The Will Herndon Foundation fights to find cure for ...

    May 22, 2018 · The Woodlands resident Will Herndon had just turned 6 when he was diagnosed with juvenile Batten disease—a rare and fatal degenerative brain disease with no known cure.

  6. www.facebook.com › willherndonfundThe Will Herndon Research Fund | The Woodlands TX - Facebook

    The Will Herndon Research Fund, The Woodlands, Texas. 3,829 likes · 2 talking about this. Will Herndon Fund (HOPE) is dedicated to saving Will Herndon, son of Missy & Wayne. Since 2009, we have...

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  8. beyondbatten.org › aboutAbout the Foundation - Beyond Batten Disease Foundation

    Apr 17, 2014 · Following their son’s diagnosis in 2009, Missy and Wayne Herndon joined Beyond Batten Disease Foundation to create the Will Herndon Fund for Research (HOPE). With the Woodlands community and Will’s Warriors, an army of HOPE volunteers, they have generated millions of dollars to support our research efforts.

  9. beyondbatten.org › a-mothers-story › the-torch-of-hopeA Mother's Story - Beyond Batten Disease Foundation

    Sep 7, 2012 · Three years ago, Missy and Wayne Herndon received the shocking news that their then 6 year old son, Will, had been diagnosed with Batten disease. Like the Bensons, the Herndons responded with a “knowing” that they had to do something to make a difference.

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