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A genetic disease called juvenile Batten that had no treatment, no cure and is always fatal. Missy and Wayne Herndon received this diagnosis in June of 2009 for their son Will. The Will Herndon Research Fund was created in August of that same year through a partnership with The Benson Family and Beyond Batten Disease Foundation with a vision of ...
- Meet Will
Big Brother, Son, 11 th Grader, Baseball player, Animal...
- Get Involved
The Will Herndon Research Fund ⁄ Get Involved. So many ways...
- Events
The Will Herndon Research Fund ⁄ Events-22. Immediate Byte....
- HOPE on the Green
The Will Herndon Research Fund ⁄ HOPE on the Green Spring...
- HOPE Under the Stars
The Herndon Family. #HOPE4Will Sponsor. Truluck’s The...
- Mah Jongg
The Tiles Gone Wild Mah Jongg tournament benefits HOPE: The...
- Meet Will
In 2009, Missy and Wayne Herndon founded The Will Herndon Research Fund (HOPE) to raise awareness and support for research into finding a cure for juvenile Batten disease. This effort began in honor of their son, Will, who was diagnosed at the age of 6. Will is now 13 years old and lives in the Woodlands, TX with his parents.
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In 2009, Missy and Wayne Herndon founded The Will Herndon Research Fund (HOPE) to raise awareness and support for research into finding a cure for juvenile Batten disease. This effort began in honor of their son, Will, who was diagnosed at the age of 6.
Apr 17, 2014 · Following their son’s diagnosis in 2009, Missy and Wayne Herndon joined Beyond Batten Disease Foundation to create the Will Herndon Fund for Research (HOPE). With the Woodlands community and Will’s Warriors, an army of HOPE volunteers, they have generated millions of dollars to support our research efforts.
May 22, 2018 · The Woodlands resident Will Herndon had just turned 6 when he was diagnosed with juvenile Batten disease—a rare and fatal degenerative brain disease with no known cure.
