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1. • • Cooley’s anemia, also called thalassemia, is a fatal genetic blood disorder. Children born with thalassemia have blood that can’t carry oxygen around the body the way it is supposed to. As a result, these children need lifelong blood transfusions, as often as every 2 weeks, in order to live.
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     What is Cooley’s anemia - thalassemia

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   What is Cooley's anemia?

   • The major form of this disorder is also known as Cooley's anemia. Established in 1954, the foundation was conceived by its founder, Frank Ficarra, the father of two children who were born with thalassemia. Although the Foundation was founded in Brooklyn, New York, it has expanded its scope to include patients from across the United States .

   Cooley's Anemia Foundation - Wikipedia

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   What is thalassemia major or Cooley's anemia?

   • Thalassemia Major or Cooley’s Anemia. This is the most severe form of beta thalassemia in which the complete lack of beta protein in the hemoglobin causes a life-threatening anemia that requires regular blood transfusions and extensive ongoing medical care.

   What is Thalassemia? - The Cooley's Anemia Foundation

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   What are the symptoms of beta thalassemia major (Cooley's anemia)?

   • Beta thalassemia major (Cooley’s anemia) often leads to severe anemia symptoms noticeable by age 2. Symptoms of severe anemia include those associated with mild to moderate disease. Additional symptoms may include: Poor appetite. Pale or yellowish skin (jaundice). Urine that’s dark or tea-colored. Irregular bone structure in your face.

   Thalassemia: Types, Traits, Symptoms & Treatment - Cleveland Clinic

   my.clevelandclinic.org/health/diseases/14508-thalassemias

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   Can beta thalassemia cause anemia?

   • Beta thalassemia can cause you to experience anemia symptoms. Types include beta thalassemia major, beta thalassemia intermedia and beta thalassemia minor. What is beta thalassemia?

   Beta Thalassemia: Types, Symptoms & Treatment - Cleveland Clinic

   my.clevelandclinic.org/health/diseases/23574-beta-thalassemia

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3. en.wikipedia.org › wiki › ThalassemiaThalassemia - Wikipedia

   en.wikipedia.org › wiki › Thalassemia

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   Symptoms and presentations of thalassemia can change over time. Thalassemia is also known as Cooley's anemia or Mediterranean anemia. [citation needed] Thalassemias are genetic disorders. There are two main types, alpha thalassemia and beta thalassemia.

   • Iron Chelation

     Chelation therapy is a medical procedure that involves the...

   • Cooley's Anemia Foundation

     Cooley’s Anemia Foundation ( CAF) is an American 501 (c) (3)...

4. www.thalassemia.org › learn-about-thalassemia › aboutWhat is Thalassemia? - The Cooley's Anemia Foundation

   www.thalassemia.org › learn-about-thalassemia › about

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   In this condition, the lack of alpha protein is great enough to cause severe anemia and serious health problems such as an enlarged spleen, bone deformities and fatigue. It is named for the abnormal hemoglobin H (created by the remaining beta globin) that destroys red blood cells.

5. en.wikipedia.org › wiki › Cooley&Cooley's Anemia Foundation - Wikipedia

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   Cooley’s Anemia Foundation ( CAF) is an American 501 (c) (3) nonprofit organization that funds medical research and education to benefit individuals living with the genetic blood disorder thalassemia. The major form of this disorder is also known as Cooley's anemia.

6. www.thalassemia.org › about-the-cooleys-anemiaAbout The Cooley's Anemia Foundation

   www.thalassemia.org › about-the-cooleys-anemia

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   The Cooley’s Anemia Foundation is dedicated to serving people afflicted with various forms of thalassemia, most notably the major form of this genetic blood disease, Cooley’s Anemia/Thalassemia Major. Mission. Our mission is advancing the treatment and cure for this fatal blood disease.

7. my.clevelandclinic.org › health › diseasesBeta Thalassemia: Types, Symptoms & Treatment - Cleveland Clinic

   my.clevelandclinic.org › health › diseases

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   Jul 20, 2022 · Beta thalassemia is an inherited blood disorder that limits your body’s ability to make beta-globin. Beta-globin is an important protein needed to make hemoglobin and red blood cells. Beta thalassemia can cause you to experience anemia symptoms. Types include beta thalassemia major, beta thalassemia intermedia and beta thalassemia minor.

8. my.clevelandclinic.org › health › diseasesThalassemia: Types, Traits, Symptoms & Treatment

   my.clevelandclinic.org › health › diseases

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   Missing three alpha genes (Hemoglobin H disease) often causes anemia symptoms at birth and leads to severe lifelong anemia. Beta thalassemia major (Cooley’s anemia) often leads to severe anemia symptoms noticeable by age 2. Symptoms of severe anemia include those associated with mild to moderate disease.

9. medlineplus.gov › thalassemiaThalassemia | Beta Thalassemia | MedlinePlus

   medlineplus.gov › thalassemia

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   Dec 16, 2016 · Resources. Find an Expert. For You. Children. Patient Handouts. Summary. Thalassemias are inherited blood disorders. If you have one, your body makes fewer healthy red blood cells and less hemoglobin. Hemoglobin is a protein that carries oxygen to the body. That leads to anemia.