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  1. Mar 9, 2021 · The syndrome is named after Petrus Johannes Waardenburg, a Dutch ophthalmologist, who first described a patient with dystopia canthorum, hearing loss, and retinal pigmentary differences. Statistics WS causes 1 to 3% of cases of congenital deafness and affects approximately 1 in 42,000 people.

    • The Waardenburg syndrome admission that catapulted a vlogger into viral fame. 21-year-old Canadian blogger Stef Sanjati revealed she has Waardenburg syndrome—and went viral.
    • An Ethiopian boy who dreams of becoming a soccer star. An 8-year-old boy from Jinka, Southern Ethiopia, has been mesmerizing people with his bright blue eyes.
    • A pop icon's daughter whose makeup artist revealed her eye color is caused by a "genetic condition" The most famous person on our list, Paris Jackson, 19, is the daughter of Michael Jackson and a model in her own right—her cold, almost transparent blue eyes are one of her most notable features.
    • A Peace Corps volunteer shares a image of a little girl with Waardenburg syndrome on Reddit. A Redditor known only as Ayreis posted a photo of little Senegalese girl who is believed to have Waardenburg Syndrome.
  2. Nov 8, 2023 · Waardenburg syndrome is a rare genetic condition that affects the pigmentation of a person’s skin, hair, and eyes. It is characterized by distinct facial features, hearing impairment, and, in some cases, changes in hair and eye color. While it is a relatively uncommon condition, several celebrities have shown incredible resilience and success ...

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  4. Jan 28, 2018 · 27 January 2018. By Lucy Edwards,BBC News, Ouch. Youtuber Stef Sanjati talks about her Waardenburg syndrome and being transgender. Called feminine by some people, and "fish face" by others due to ...

  5. Aug 29, 2017 · Paris Jackson's blue eyes are due to a "rare eye condition." Although the specific condition has not been confirmed, there is a chance it is Waardenburg syndrome. The genetic syndrome affects 1 in ...

  6. Mar 28, 2024 · A health checkup revealed Shakul had Waardenburg syndrome, a rare genetic disorder that can cause profound hearing loss and pigmentation changes in the hair, eyes and skin. Many people with Waardenburg syndrome have two different-colored eyes or bright blue eyes, as Shakul has. Another symptom of Waardenburg syndrome is partial albinism.

  7. Jan 8, 2018 · Doctors have identified four types of Waardenburg syndrome. Their symptoms vary, but people with each type tend to have similar symptoms. Types 1 and 2 are the most common.. Type 1

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