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  1. Jun 5, 2023 · Gunnars story centered for me how critically important this work is − not just to save a life, but to help people thrive. Gunnar was diagnosed with cystic fibrosis in 1993.

  2. Feb 23, 2023 · I quickly learned that my best chance of survival lay in my desire to learn about American health policy, drug development, care delivery and the nuanced way the global health system treats people living with chronic conditions. This blog details that journey and more.

  3. “IVF granted me a dream that I once thought near impossible and I am forever grateful” – Gunnar Esiason. The BEF IVF Grant Program is dedicated to ensuring that adults with CF who are challenged in their family building journey have financial resources to utilize assisted reproductive technology.

  4. Feb 13, 2020 · Courtesy of Gunnar Esiason Trikafta has transformed a fatal, rare disease in a matter of weeks. Since its approval, people living with cystic fibrosis across the United States have received a second chance at life and are taking advantage of it.

  5. Dec 28, 2021 · I am a Dad! | Gunnar Esiason Blog. Posted by Gunnar Esiason | Dec 28, 2021 | Family Building, In My Experience |. What a surreal couple of days! Darcy safely delivered our baby boy, Kaspar Fitzwilliam Esiason, into the world, and when it happened, we both couldn’t stop crying.

  6. Gunnar Esiason is a cystic fibrosis and rare disease patient leader, who is passionate about early-stage drug development, patient empowerment and health policy.

  7. Gunnar Esiason is a cystic fibrosis and rare disease patient leader, who is passionate about early-stage drug development, patient empowerment and health policy. He is the head of...

    • RAVen (RA Ventures)
  8. Feb 2, 2024 · Former Bengals MVP QB Boomer Esiason has spent more than 30 years raising millions for cystic fibrosis research and awareness so kids like his son Gunnar could beat the odds and win their fight...

  9. Gunnar Esiason is a rare disease patient leader, whose recovery from near end-stage cystic fibrosis thanks to a pharmaceutical breakthrough has motivated his desire to see cures delivered to the millions living with unmet medical needs.

  10. Mar 22, 2019 · I spoke with Gunnar Esiason, an advocate and educator about living with CF, and his efforts to spread awareness and advocacy as CF Advocate and Program Director for the Boomer Esiason...

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