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Dec 8, 2023 · In 2018, Charlotte became the first patient in the world to receive the experimental gene therapy treatment for Batten disease. The procedure was successful, and Charlotte showed signs of improvement. Her seizures decreased, and she regained some of her lost motor skills.
In 2015 Charlotte (then age 4) and Gwenyth (then age 2) Gray were diagnosed with Batten disease. Doctors explained that there was no cure, nor any treatment options for this rare neurodegenerative disorder which would leave the girls blind, immobile, cognitively impaired, and ultimately gone between the ages of 6 and 12.
15 Children Treated. Donate Now. The Charlotte & Gwenyth Gray Foundation to Cure Batten Disease was founded to save the lives of all children impacted by Batten Disease by accelerating the research for a cure and providing support to patients and their families.
Apr 27, 2016 · Just a little more than a year after Miracle film producer Gordon Gray and his wife Kristen learned both their young daughters Charlotte and Gwenyth were afflicted with the rare and fatal brain...
When producer Gordon Gray and his wife Kristen revealed that both their daughters suffered from Batten, an extremely rare degenerative and fatal brain disorder for which no cure currently...
May 6, 2016 · Gordon and Kristen Gray's daughters, 5-year-old Charlotte and 2-year-old Gwenyth, were diagnosed with Batten CLN6, a degenerative brain disorder that causes blindness, seizures and death.
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Aug 21, 2018 · After revealing the desperate effort by producer Gordon Gray and his wife Kristen to save the lives of their daughters following a grim diagnosis of the rare brain disorder Batten disease in...
