2017
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Condition. Velásquez's condition is a extremely rare, previously undiagnosed, and non-terminal genetic disorder. Her condition bears similarities to many other conditions, especially progeria.
Born with a rare medical condition called Marfanoid–progeroid–lipodystrophy syndrome which prevents her from gaining fat, Lizzie grew up looking considerably different from the other children. She was bullied a lot due to her appearance, and the fact that she is vision-impaired only added to the challenges she faced.
Born in Austin, Texas, Lizzie Velasquez was diagnosed with a rare condition, neonatal progeroid syndrome, which prevented her from gaining weight and affected her eyes, bones, and heart. Lizzie didn’t realize she was different in any way from anyone else since her parents never treated her any differently.
Jan 9, 2014 · Velásquez has a rare condition that prevents her from gaining weight, even though she eats every 15 minutes. The Texas native has never weighed more than 64 pounds in her entire life, the International Business Times reported.
Mar 14, 2015 · Velasquez was already used to being bullied daily for the way she looks. Born with two rare conditions - Marfan and lipodystrophy - she is unable to gain weight, no matter how much she eats.
Nov 8, 2013 · But now, scientists who have been studying Lizzie for more than ten years believe they are closing in on the gene that causes her condition, which may one day lead to treatments and a cure.
Sep 27, 2015 · NPR's Rachel Martin speaks with Lizzie Velasquez, the subject of the new documentary, A Brave Heart. Velasquez suffers from a rare genetic condition and was the victim of terrible bullying.
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