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Nov 23, 2016 · It wasn't until June 2013, when Kennedy was 15 years old, that she was diagnosed with juvenile Batten disease, a rare disorder that generally doesn't manifest itself for the first five to 10 years of a child's life, according to the National Institute of Neurological Disorders and Stroke.
- mromero@deseretnews.com
Jun 27, 2017 · Tags. #RAREis Global Advocate Grant, BDSRA, Kenned'y H.U.G.S. Foundation, Kennedy Hansen, Love Kennedy film, T.C. Christensen. Read an interview with the Hansen family about the film "Love, Kennedy," which chronicles the life of Kennedy Hansen, who died of Batten disease at age 16.
- Features Writer
- Meeting Trials with Faith
- Missionary Miracles
- Finding Healing
“During our family’s and Kennedy’s journey, there were very challenging times,” shares Kennedy’s father, Jason. “When it got really tough, we turned to our knees and prayed sometimes until they hurt. We made sure to never argue about Kennedy and to always embrace one another in many, many hugs.” But they haven’t just prayed as a family. Kennedy’s b...
As the Hansens have continued to rely on God, they’ve seen even more far-reaching blessings that have resulted from Kennedy’s experience, from comfort to missionary experiences. One of Kennedy’s cheer friends, Lexi Velsquez, shares a particularly powerful story of when Kennedy visited her after she passed away, telling Lexi that missionaries were c...
The Hansens hope that by sharing Kennedy’s story and love that others can find solace in times of trial. Heather says, “My advice to others facing similar situations is to encourage them to be courageous in how they face their difficult time. Don’t give up. There are so many loving people around you that want to help you. Let them. Always be gratef...
Jun 6, 2014 · Kennedy, of West Haven, was the last surviving child with Batten Disease in Utah. For more than five years before the diagnosis, the unnamed disease had slowly claimed Kennedy's cognitive abilities, motor skills and eyesight.
- mromero@deseretnews.com
May 1, 2017 · "Love, Kennedy" tells the true story of Kennedy Hansen, a friendly and fun-loving teenage girl from West Haven who died of Juvenile Batten Disease in May 2014. Christensen ("17 Miracles," "The Cokeville Miracle") wrote, produced and directed the film, which was made in cooperation with Kennedy's family and friends. The movie debuts in theaters ...
- ttoone@deseretnews.com
Dec 6, 2017 · When Love, Kennedy came to theaters in June, everyone was drawn to Kennedy Hansen, a girl with juvenile Batten's disease who had a faith and love that conquered trials, who believed in the power of prayer, and who still fulfilled her dream of being a cheerleader despite all she faced.
Her family spent years trying to figure out what was wrong, until she was finally diagnosed at 15 years old with Juvenile Batten Disease. The disease essentially meant her brain was dying. She...
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