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Connect with an Alnylam rep to learn about a treatment for acute hepatic porphyria (AHP). View clinical trial data. Find dosing information. See mechanism of action.
We're here to help! Personal assistance is available to you from the United Porphyrias. We collaborate with a network of experts that are members of the Porphyrias Consortium.
AHP is characterized by severe, diffuse abdominal pain and a range of other symptoms. AHP is often misdiagnosed; learn how to recognize the symptoms of AHP in your patients.
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Apr 5, 2023 · Porphyria (por-FEAR-e-uh) refers to a group of rare disorders that result from a buildup of natural chemicals called porphyrins in the body. Porphyrins are needed to make heme, a part of hemoglobin. Hemoglobin is a protein in red blood cells.
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Porphyria is a group of disorders in which substances called porphyrins build up in the body, adversely affecting the skin or nervous system. The types that affect the nervous system are also known as acute porphyria, as symptoms are rapid in onset and short in duration.
Feb 15, 2018 · The term porphyria describes a group of eight disorders that affect the skin and nervous system. Most of these disorders are inherited (passed down from family members). One type of porphyria, porphyria cutanea tarda (PCT), isn’t always inherited.
Jul 13, 2020 · Could it be porphyria? Porphyrias are a group of rare inherited blood disorders. Here's how to recognize and treat them.
- Lydia Krause
Nov 16, 2022 · Porphyria is a group of disorders that can cause nerve or skin problems. There's no cure, but you can get treatments that will help you manage your symptoms. If you have porphyria that affects...
What are porphyrias? What are the types of porphyria? How common are porphyrias? Who is more likely to get porphyria? What are the complications of porphyrias? What are the symptoms of porphyria? What causes porphyrias?
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related to: porphyriaSign up today to receive updates on a treatment for AHP for adults. Get help with starting treatment and receive patient support throughout the process.
Connect with an Alnylam rep to learn about a treatment for acute hepatic porphyria (AHP). View clinical trial data. Find dosing information. See mechanism of action.
We're here to help! Personal assistance is available to you from the United Porphyrias. We collaborate with a network of experts that are members of the Porphyrias Consortium.
