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Feb 28, 2024 · Raising awareness for patients, families and carers around the world that are affected by rare diseases.
Rare Disease Day is a global initiative to raise awareness and generate support for everyone who is on a rare medical journey. It takes place on the last day of February, which this year is February 29th, the rarest day of the year.
Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.
Nov 21, 2023 · With 100 days to go, the countdown to Rare Disease Day 2024 begins today. This isn’t just a date on the calendar; it’s the start of a global movement, a collective voice championing the cause of the 300 million people living with rare diseases.
Apr 23, 2024 · On Feb. 29, 2024 — the rarest day of the year — patients, clinicians, researchers, drug developers and advocates traveled to the NIH main campus or tuned in to NIH VideoCast for Rare Disease Day (RDD) at NIH. More than 2,000 people attended RDD at NIH.
Rare Disease Day Tools & Resources. Help us spread the word about #RareDiseaseDay online and in person in your community using the tools below. 2024 Sponsors.
Rare Disease Day® takes place worldwide, typically on or near the last day of February each year, to raise awareness among policymakers and the public about rare diseases and their impact on patients’ lives.
Rare Disease Day. 134,210 likes · 75 talking about this. An international, awareness-raising event, each year Rare Disease Day has enjoyed an ever growing number of participating countries with over...
Rare Disease Day is the oficial international awareness-raising campaign for rare diseases which takes place on the last day of February each year. The main objective of the campaign is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.
Dec 17, 2021 · Rare Disease Day 2022. Posted December 17, 2021 by NORD. Categorized in -. Uncategorized. The Importance of Patient Voices and Data Analytics. Helping Rare Disease Patients: A Conversation with Dr. Neilan about the Rare Disease Centers of Excellence Program.
