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Since Jake's diagnosis, Grunberg, 42, has used his celebrity status to raise awareness of epilepsy, a neurological condition that affects over 50 million people worldwide. Epilepsy is characterized by seizures—temporary loss of consciousness or muscular control—that are precipitated by abnormal electrical overload on neurons within the brain.
- Jake’s Epilepsy Story
- Still An Epilepsy Stigma
- Depictions of Epilepsy on TV and Movies
- Talking About Epilepsy to Others
- From A Caregiver’S Perspective
- ‘The Caregiver Series’ on YouTube
- Advice on Taking Care of Yourself and Your Relationships
- What Is Jake Up to Now?
When our oldest son, Jake, turned 7, he started having seizures - they were like staring spells. At our parent/teacher meeting they told us they had noticed Jake zoning out for a few seconds at a time. Not often enough, but enough that we watched him very closely and noticed them too. We knew nothing about seizures, so at Jake's 7-year check up, we...
The numbers [of people living with epilepsy] are staggering, and people feel hidden and many are still scared to “talk about it”. The way I think about it - everybody’s got something, and we are all better off for talking about it. People around Jake know what to do if he has a seizure. People who don't understand or lack compassion, well, that's t...
Being a vocal caregiver and an actor, I usually get the call when seizures are referenced on TV or in movies. We have a very smart and alert community of people living well with epilepsy and their caregivers, so when someone tries to make light of a seizure or use it as a joke, we take offense… as we should. But sometimes I feel like even if they a...
At the root of it all, people need to talk. The more you talk and listen to someone's story, the more you learn. But more importantly, you must talk to your doctor about it. Educate yourself. The body changes, what works when you are 7 may not work when you're 15. If it’s safe and worth trying, why not? Jake is on a handful of meds, he is considere...
Today, we have so much knowledge at our fingertips. When you search online you won’t see 'everything is gonna be fine', it comes up with horror, death and trauma. You are overwhelmed with all the information at first. As a parent, you just want to find the magic pill. You need to trust your doctors. You need to see a specialist, an “epileptologist”...
I've had my podcast ‘Talk About It’for a long time. I’ve learned that caregivers need to be celebrated. The last person you think of is yourself, and you need time for yourself. In my new series, The Caregiver, we find caregivers and celebrate them. I meet the family, we do something they enjoy like painting or riding in a nice car. The conversatio...
As a parent, you have to take care of yourself. This also means taking care of your relationships. If you have more than 1 child, try to share equal time with each. When Jake was 7, his younger brother Ben said to me 'I wish I had epilepsy'. I realized he wanted special time and attention with daddy too. I learned from my parents to have “special n...
He works at a production company. Jake’s loving it and he’s also got the acting bug, he's even played the younger version of me. We just did an episode of 9-1-1 Lone Star. Jake played my son and he had a blast. I am very proud of him. Of our whole family. Of the entire epilepsy community as a whole!
Feb 14, 2022 · Actor Greg Grunberg falls into the latter category, as dad to 13-year-old Jake, who was diagnosed with epilepsy. In creating TalkAboutIt.org, however, the Heroes star says he hopes to remove the...
Jan 27, 2017 · When Greg Grunberg’s son Jake began having progressively worse seizures due to epilepsy, he and wife Elizabeth were forced to make a difficult decision. The “Heroes” and “Star Wars: The Force...
- The Doctors TV
Nov 20, 2023 · His connection to epilepsy, through his 27-year-old son Jake's experiences, makes the actor a compelling voice for raising awareness — through his steadfast dedication to promoting awareness. Epilepsy is a neurological disorder in which surges of electrical activity in the brain cause recurring seizures.
Apr 1, 2009 · For “Heroes” star Greg Grunberg's son Jake, who has epilepsy, it presented its own unique challenges. "Puberty screwed up levels of gauging whether his drugs were working or not. He was having...
