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  1. Study with Quizlet and memorize flashcards containing terms like Beginning Line, Alex barely lived eight years. That's not long at all. We knew she was going to die, knew she had to, knew there was no hope, even knew it was best., It's different, a child dying. It isn't just that children are supposed to keep on living. It's much more than that. Children die with opportunities, dreams. They ...

  2. Feb 24, 2015 · A father’s moving memoir of cystic fibrosis “captures a brave child’s legacy as well as the continuing fight against the genetic disease” (The New York Times). In 1971 a girl named Alex was born with cystic fibrosis, a degenerative genetic lung disease. Although health-care innovations have improved the life span of CF patients tremendously over the last four decades, the illness ...

  3. But because the rest of us have had the good fortune to stumble onto his story of Alex, many, many thousands of others have found meaning in their own lives as a result of Alex's life, however brief it was. The CF Foundation has also benefited. So, thank you Alex, for living, and thank you, Frank Deford, for sharing your daughter with the rest ...

  4. Feb 24, 2015 · The memoir “Alex: The Life of a Child” is the result. “Alex” is inevitably depressing at times. The death and disease of children is a tragic topic to begin with, and to read from a loving ...

  5. Feb 28, 2018 · Alex: The Life of a Child is THE book about life with cystic fibrosis. In the world of cystic fibrosis, many read it upon learning about the diagnosis of their child. Some parents hide it from their children, hoping they never find it… others read it with their kids. It will forever remain THE book about CF.

  6. Based on true events, 'Alex: The Life of a Child' follows former 'Sports Illustrated' writer Frank Deford and his wife Carole when their happy, all-American family is rocked to the core when their baby daughter Alex is diagnosed with Cystic Fibrosis.

  7. Dec 16, 2008 · 14 Responses to “Alex: The Life of a Child” Jon Erickson Says: June 15, 2009 at 7:38 PM. Alex was an incredible person and her father’s book really gets it across.

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