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Apr 6, 2018 · A Minnesota teen who made headlines for his rare and painful skin disease died on Wednesday in Minnesota. He was 17. Jonathan Pitre was known as “Butterfly Child,” as he was diagnosed with ...
- 1 min
- Char Adams
Nov 1, 2022 · Author-illustrator Marc Majewski delivers a gorgeously painted, tender story about a young child who loves dressing up as a butterfly. A joyful celebration of creativity, self-expression, and family—perfect for fans of Jessica Love and Beatrice Alemagna.
- (20)
Nov 1, 2022 · Butterfly Child. Marc Majewski. 4.25. 246 ratings54 reviews. Author-illustrator Marc Majewski delivers a gorgeously painted, tender story about a young child who loves dressing up as a butterfly. A joyful celebration of creativity, self-expression, and family—perfect for fans of Jessica Love and Beatrice Alemagna. I am a butterfly.
- (244)
- Hardcover
- Marc Majewski
Ads · Butterfly Child
May 4, 2018 · Jonathan Pitre was born with “the worst disease you’ve never heard of”, a rare and excruciatingly painful skin disorder called Epidermolysis Bullosa. But through courage, bravery, and an...
- 2 min
- 30.6K
- Ross Rheaume
- Epidermolysis Bullosa Simplex
- Junctional Epidermolysis Bullosa
- Dystrophic Epidermolysis Bullosa
- Kindler Syndrome
- Epidermolysis Bullosa Acquisita
This is the most common form of epidermolysis, but it’s still very rare, affecting between 1 in 30,000 to 1 in 50,000people. It usually begins at birth or in early childhood, but can develop in the adult years, too. Blistering may improve with age in some people with this subgroup of the condition. In mild cases, blistering is usually limited to th...
This is one of the more severe forms of the condition. It affects about 3 per millionpeople and can begin at birth or in early childhood. Junctional epidermolysis bullosa causes blistering over large areas of the body and can affect mucous membranes, like the lining of the mouth and even internal organs. When it impacts organs like the intestines, ...
Dystrophic epidermolysis develops in about 3.3 per 1 million people, usually in response to an injury or friction from rubbing or scratching. The hands, feet, and elbows are most often affected, but blisters can also appear across the entire body. When these blisters form in the mouth or digestive tract, scars form as they heal. This scarring can c...
Kindler syndrome is a type of epidermolysis bullosa that usually begins at birth or in infancy but lessens with time. Blisters usually form on the backs of the hands and the tops of the feet. Over time, scarring in these areas can fuse fingers and toes together or give the skin a thin, papery texture. With this form, you may also have symptoms like...
Unlike other types of epidermolysis bullosa that are caused by genetic mutations, epidermolysis bullosa acquisita is an autoimmune condition that usually develops in adulthood, typically in the 30s or 40s. In the typical form of this disease, only “traumatized” skin that’s injured is affected with symptoms like: 1. tight blood- or pus-filled bliste...
'What is a butterfly child?' - easily explained. Epidermolysis Bullosa - the disease that determines the everyday life of butterfly children - is a very complex topic. In order to communicate this topic briefly and easily understandable, pictures with a lot of expressiveness help.
BUTTERFLY CHILD By Marc Majewski. HarperCollins, 2022 ISBN: 9780063021556. 48 pages, 8.25 x 0.5 x 12.5 inches. A young child loves the spots and patterns found on butterflies, and fashions bold orange wings to become a butterfly child.
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