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  1. Nov 29, 2023 · Oh wow, it’s already mid-November — I’m a bit tardy to welcome you to Lung Cancer Awareness Month! The world feels especially bleak these days, and it’s incumbent on each of us to contribute light where we can.

    • About Me

      a blog about my journey with lung cancer. Browse: Home »...

    • My Diagnosis Story

      My story of a mis-diagnosed nagging cough for weeks and...

    • Why I Blog

      Lung cancer is the least funded cancer in terms of research...

    • Speeches and Media

      Voices of Value: Lisa Goldman, A Woman’s Health, July 2016....

    • Resources

      Bonnie J. Addario Lung Cancer Foundation. Lung Cancer...

  2. Oct 18, 2021 · February 8, 2021 · by Lisa Goldman · in General, Lung Cancer Facts. Last week, I presented a talk titled “Patient-Directed Innovation, Research and Clinical Trials” at the IASLC’s World Conference on Lung Cancer (WCLC).

    • Personal Lung Cancer Blogs
    • Gray Connections
    • Every Breath I Take
    • Faith, Family & Friends
    • Emben Kicks Cancer
    • A Lil Lytnin’ Strikes Lung Cancer
    • ​Life and Breath: Outliving Lung Cancer
    • Lung Cancer Organization Blogs
    • Lung Cancer Alliance
    • LUNGevity

    If you’re looking for personal experiences, look for blogs written by people with lung cancer. You can find someone who is living with the same type of lung cancer as you or is at a similar point in their journey.

    Janet Freeman-Daily, the blogger behind “Gray Connections: Perspectives on Lung Cancer, Brain Science, and Other Stuff,” was diagnosed with non-small cell lung cancer in 2011—a surprise, as she wrote that she has never smoked anything “except a salmon.” The lung cancer quickly became metastatic. After taking part in different treatments and trials,...

    “Every Breath I Take,” a blog by Lisa Goldman, goes through her journey with non-small cell lung cancer. She was diagnosed in 2014 after months of being unable to shake off a cough. She blogs and speaks to help raise awareness and education about lung cancer.

    The blog ”Faith, Family, & Friends” by Lysa Buonanno is about living with stage 4 lung cancer. Diagnosed in 2011, Lysa is still battling her disease and writes about everything from cancer treatments to her family to dates with her husband to lung cancer survivor conferences—all with a positive attitude.

    Emily Bennett Taylor of “EmBen Kicks Cancer” went from being a college athlete to a stage 4 lung cancer patient at the age of 28. Diagnosed in 2012, her journey wasn’t easy, beginning with aggressive chemotherapyfollowed by an intricate surgery. But as her story continues, it seems almost like a fairy tale. Her greatest hope in life was to be a mom...

    Tori Tomalia was a stage 4 lung cancer patient, patient advocate, speaker, writer, and mom of three blogged about her cancer journey, which started in 2013. She died in February 2021, and wrote for the last time the month before (“Fifth Time’s the Charm”). Tori’s blog “A Lil Lytnin’ Strikes Lung Cancer” is organized into five chronological chapters...

    Linnea Olson was an artist, writer, and lung cancer advocate. In 2005, the divorced mother of three was diagnosed with stage 1B non-small cell lung cancer (adenocarcinomawith BAC subtype). Initially, her prognosis looked very good and she underwent a lobectomy and adjuvant chemotherapy. Linnea died of lung cancerin November of 2021, so her blog is ...

    There are many lung cancer nonprofits and other organizations that raise awareness for lung cancer with blogs.

    The Foundation for Lung Cancer’s blogcovers a wealth of topics, including advocacy, community engagement, and research updates. A mix of healthcare professionals, experts, advocates, and patients author the posts, which have been published since 2014.

    LUNGevity is focused on fundraising to support lung cancer research. With pages of blog postsgoing back to 2017, you can find information on everything from lung cancer education to key updates from medical conferences. There are plenty of guest posts from experts, and patients, as well as spotlight posts on volunteers and caregivers.

  3. Sep 1, 2021 · Meet Lisa Goldman who mobilized ROS1-positive cancer patients to answer researchers needs and started an advocacy group.

    • Lambeth Hochwald
  4. Jun 7, 2024 · For a Terminal Cancer Patient, Good News Always has an Asterisk. I’m often explicitly encouraged by lung cancer advocacy organizations, “tell us when you have a big milestone to celebrate so we can splash it on social media.”.

  5. Precision Medicine Podcast guests and lung cancer patients Lisa Goldman and Tori Tomalia discuss the the ROS1ders, an organization they created to support those with ROS1-positive cancer— a group that represents just 2% of lung cancer patients.

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  7. Aug 4, 2020 · Living With Lung Cancer: Lisa Goldman is living with lung cancer thanks to advances in lung cancer research. Watch her story from diagnosis (and misdiagnosis) to the treatment she is on...

    • 2 min
    • 162
    • Lung Cancer Foundation of America
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