Search results
When producer Gordon Gray and his wife Kristen revealed that both their daughters suffered from Batten, an extremely rare degenerative and fatal brain disorder for which no cure currently...
Apr 27, 2016 · Updated April 27, 2016. Just a little more than a year after Miracle film producer Gordon Gray and his wife Kristen learned both their young daughters Charlotte and Gwenyth were afflicted...
- An 18-Month Medical Odyssey
- A Deadly Disease
- Other Families Reach Out
In September 2013, the Grays’ older daughter, Charlotte, now four and a half, began having trouble speaking. Over time, the parents watched their little girl’s ability to communicate degrade “from 8-word sentences to 5-word sentences to mixing up words,” says Kristen. After Charlotte began speech therapy, her parents still felt that something wasn’...
People who suffer from Batten experience blindness, seizures, personality and behavioral changes, dementia, the loss of motor skills and the ability to communicate according to the Batten Disease Support and Research Association. Children with the Grays’ particular mutation of Batten die between the ages of 6 and 12. Although Batten was discovered ...
Since launching the foundation – and their social media blitz the last few days – the Grays have heard from other families affected by the disease, many of whom have already lost children. “I’ve had 10 to 15 families with kids who have degenerative brain disorders that are similar who have expressed hope in all that’s been happening in the past cou...
- 4 min
- Tiare Dunlap
Jun 14, 2015 · Filmmaker Gordon Gray is racing against time to help his daughters who both have Batten disease, a rare and fatal genetic neurodegenerative condition.
Apr 27, 2016 · When producer Gordon Gray and his wife Kristen’s two young daughters were diagnosed with a rare and deadly brain disease in March 2015, the couple knew they needed a miracle. Thanks to the...
The Charlotte and Gwenyth Gray Foundation exists to improve and save the lives of all children impacted by Batten disease and other neurodegenerative disorders. Founded by two parents committed to finding a cure for Batten Disease to save the lives of their daughters, the Foundation recognizes firsthand the day-to-day challenges of living with ...
Jun 10, 2015 · Movie exec Gordon Gray is rallying celebrity friends to help him raise the $10 million needed to fund research for a cure for the deadly Batten Disease that threatens the lives of his...
