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Progeria is an ultra-rare, fatal, “rapid-aging” disease that afflicts children who, without the FDA-approved treatment lonafarnib, die of heart disease at an average age of 14.5 years.
Progeria is a rare, fatal genetic condition characterized by an appearance of accelerated aging in children. Click to learn more about progeria here.
Mar 31, 2024 · Today, PRF is the only non-profit organization solely dedicated to finding treatments and the cure for Progeria. PRF is hailed as a prime example of a successful translational research organization, moving from creation, to gene discovery, to first-ever drug treatment in just 13 years.
About Progeria. What’s New; Progeria FAQ; For School Reports; Science Behind Progeria; Connection to Other Diseases; The FTI Drug; Scientific Publications; Grand Rounds; Close; Parents & Doctors. International Progeria Registry; Patient Care and Handbook; Clinical Trials; Diagnostics Testing; Close
In just a few short years, PRF has created and centralized all of the research-related resources needed to propel forward as quickly as possible towards treatments and cure, for all children diagnosed with Progeria worldwide.
Mar 3, 2021 · The mission of The Progeria Research Foundation (PRF) is to find the cause, treatments and cure for Progeria and its aging-related disorders, including heart disease (www.progeriaresearch.org). All scientific projects presented at the workshop were supported in part by PRF’s grant program.
The Progeria Research Foundation (PRF) was founded in 1999 in response to the complete lack of progress being made to help children with Progeria. Today, PRF continues to be the only organization in the world solely dedicated to finding treatments and the cure for Progeria.
Established in 1999, the mission of The Progeria Research Foundation (PRF) is to discover a cure and effective treatment for Hutchinson-Gilford progeria syndrome (Progeria or HGPS) and its aging related disorders by funding medical research, providing research-related programs, and educating the families, their physicians, scientists and the ...
Dec 27, 2013 · To learn more about the genetic test for progeria, go to The Progeria Research Foundation Diagnostic Testing Program. Additional Resources for Progeria Information. Last updated: December 27, 2013. Progeria is an extremely rare genetic disease of childhood characterized by dramatic, premature aging.
Together with caring, dedicated board members and other generous volunteers, The Progeria Research Foundation was created to raise awareness, educate and help the families, their doctors, researchers and the general public about Hutchinson-Gilford Progeria Syndrome.
