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Feb 28, 2024 · Join the Countdown: Rare Disease Day 2024 Starts Now. 21 November 2023. With 100 days to go, the countdown to Rare Disease Day 2024 begins today. This isn’t just a date on the calendar; it’s the start…. Read article.
Rare Disease Day is a global initiative to raise awareness and generate support for everyone who is on a rare medical journey. It takes place on the last day of February, which this year is February 29th, the rarest day of the year.
Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.
Apr 23, 2024 · On Feb. 29, 2024 — the rarest day of the year — patients, clinicians, researchers, drug developers and advocates traveled to the NIH main campus or tuned in to NIH VideoCast for Rare Disease Day (RDD) at NIH. More than 2,000 people attended RDD at NIH.
Rare Disease Day is an observance held on the last day of February to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families. [1] [2] [3] [4] [5] [6] The date is chosen because in leap years it is February 29, the rarest date.
Rare Disease Day Tools & Resources. Help us spread the word about #RareDiseaseDay online and in person in your community using the tools below. 2024 Sponsors.
Nov 21, 2023 · 21 November 2023. With 100 days to go, the countdown to Rare Disease Day 2024 begins today. This isn’t just a date on the calendar; it’s the start of a global movement, a collective voice championing the cause of the 300 million people living with rare diseases.
