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Jan 13, 2024 · JR Bourne is known for his charity work; his niece Madison is a cystic fibrosis patient, and Bourne is a member of the Cystic Fibrosis Foundation through which he spreads awareness of the disease, and has been a regular contributor and supporter of the foundation, becoming one of the main keys to its success, often organizing fundraising events ...
It is a 501(c)(3) non-profit organization that has been established in the United States to provide the means to cure and control cystic fibrosis which is a genetic disorder that mostly affects the lungs but also the pancreas, liver, kidneys, and intestine. JR Bourne’s niece, Madison, has also been diagnosed with cystic fibrosis.
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J. R. Bourne. Gym; Days; Five; I do go to the gym five days a week. J. R. Bourne. Gym; Week; Go; My niece was born with cystic fibrosis 15 years ago, and she's incredibly healthy and an incredible competitive dancer, so I'm going to do some events for the Cystic Fibrosis Foundation. J. R. Bourne. She; Years; Healthy
Oct 18, 2014 · My niece is 15 years old and she has CF. She is currently in the hospital because she had to have her sinuses drained of all the mucus build up. She has had 3 surgeries. One for the build up. one because she got an infection where she was just drained from. Then she had an allergic reaction to...
Apr 26, 2006 · My niece is about 5 weeks old. My sister is a carrier, as am I, of CF. Two of my three children have had negative sweat tests. My daughter had an echogenic bowel on an ultrasound that was no longer detectable after birth. This is what prompted her testing. My son is failure to thrive and he had a sweat test at one year due to lack of growth.
Mar 7, 2024 · Cystic fibrosis once all but guaranteed an early death. When the disease was first identified, in the 1930s, most babies born with CF died in infancy. The next decades were a grind of incremental ...
There have been a lot of conversations about how new meds have changed what the future holds for CF patients. CF patients have made past decisions because of what we were told the future could look like for us. That information directly impacted decisions my generation made on whether to attend university, go to trade schools, travel, marry, etc.
