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Jun 5, 2023 · Gunnar Esiason, son of former Bengals quarterback Boomer Esiason, shares how he lives with cystic fibrosis and how a clinical trial restored his health and hope. Eddie Pauline, president of Ohio Life Sciences, explains why research and clinical care are vital for people with rare diseases.
Learn how Boomer Esiason and his son Gunnar, who died of cystic fibrosis in 1993, have been instrumental in creating a foundation to fund CF research, education, and support programs. The foundation has grown from a Sports Illustrated article to a global leader in the CF community and a medical breakthrough in 2012.
Feb 23, 2023 · Gunnar Esiason is a cystic fibrosis patient and health policy advocate who shares his personal and professional journey through the challenges and opportunities of living with a terminal condition. He covers topics such as gene therapy, drug pricing, biotech, healthtech and more on his blog, which also features his podcast and BEF programs.
- Life with Cystic Fibrosis
- The Reality of End-Stage Illness
- A Life Changing Clinical Drug Trial
- Lessons of Cystic Fibrosis
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“As a little boy living with a rare terminal condition, I inspired others with my hope and perseverance. As a young adult fresh out of college, I was faced with the grim reality… I would not make it to 30 without a miracle. You may know who I am. I have cystic fibrosis (CF), and when I was diagnosed in 1993 — with the genetic condition filling my l...
One day in particular, I broke. I was working as a part-time high school football coach on Long Island. I was about to head to football practice when I couldn’t start the car. Reality struck me, and I confronted my life without a future. I was heading towards end-stage illness, disability income, and an eventual end to my fight. I cried and cried. ...
Then it finally happened. In 2018 everything changed. I had the opportunity to play an active role in science when I was offered a spot in a pivotal phase III clinical trial for a drug we called ‘the triple combo’ for its various components. My life changed in a matter of days. The FDA approved the triple combo, now named Trikafta, in October 2019,...
As I now live the miracle I had waited a lifetime for, I have taken the time to reflect on the lessons critical illness taught me. First, I have seen how antibiotic resistance is quietly becoming one of the greatest threats to humanity in our time. We grow up having faith our medication arsenal, doctors, and the system will work for us. Watching on...
Gunnar Esiason is the son of quarterback Boomer Esiason, who inspired him to advocate for others with cystic fibrosis. He shares his journey of living with the rare terminal condition, from diagnosis to treatment, and how he now lives the miracle of Trikafta, a new drug that improved his lung function and quality of life.
Dec 28, 2021 · I am a Dad! | Gunnar Esiason Blog. Posted by Gunnar Esiason | Dec 28, 2021 | Family Building, In My Experience |. What a surreal couple of days! Darcy safely delivered our baby boy, Kaspar Fitzwilliam Esiason, into the world, and when it happened, we both couldn’t stop crying.
Gunnar Esiason is a cystic fibrosis patient leader and a director of patient engagement at RA Ventures. He has a MBA from Dartmouth, a MPH from Dartmouth, and a BA from Boston College.
- RAVen (RA Ventures)
Learn about Gunnar Esiason, a health care delivery expert and author, and his speaking engagements at various institutions and events. Find out his background, research, and publications in health care delivery science and cystic fibrosis.
