Search results
May 1, 2024 · By Vanessa Seifert. May 01, 2024 08:20 A.M. Colin Farrell is an award-winning actor and doting father of two. The actor's eldest son, James, was diagnosed with a neuro-genetic disorder called Angelman Syndrome. Farrell opened up about the challenges of raising a child with special needs.
- Vanessa Seifert
May 4, 2024 · Actor Colin Farrell, best known for Miami Vice and S.W.A.T., confessed that his first son James, who has Angelman syndrome, inspired him to become sober. According to the Mayo Clinic, Angelman syndrome is a genetic disorder that causes delayed development, problems with speech and balance, and intellectual disability. In some rare cases, patients could also
May 13, 2024 · The father of a son who has been diagnosed with a genetic disorder known as Angelman syndrome, Farrell is an active supporter of organizations for children and adults with special needs, and he has served as an ambassador for the Special Olympics.
May 14, 2024 · The hope Gurzick describes at the Rare Disease Caucus comes in part from advancing research from organizations like the Foundation for Angelman Syndrome Therapeutics (FAST) and the economic incentives of the Orphan Drug Act of 1983. Gurzick’s other son, Alexander, has also become an advocate.
6 days ago · Ionis said that it will independently advance ION582. The company plans to review the ION582 phase 1/2a results with regulatory authorities to align on the design of the pivotal program. Angelman syndrome is caused by a loss of function in the maternal UBE3A gene. ION582 is designed to unsilence the paternal UBE3A allele in order to increase ...
Apr 30, 2024 · International Angelman Day 2024 Round-Up. USD. in honor or in memory. See if your employer will match your donation. First Name. Last Name. Email. Your receipt will be emailed here. It's okay for FAST to contact me in the future.
May 3, 2024 · The actor raises a teenage son who can't speak and care for himself due to his rare, incurable disorder. Colin Farrell might be a big Hollywood star with two decades of work in the industry, but his most significant focus has always been on his children. The actor had two boys, James, 19, in September 2022, and Henry, 12, in March 2022.
