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Feb 13, 2020 · I have the opportunity to serve on the board of directors at the Boomer Esiason Foundation, my family’s non-profit organization, which has raised nearly $150 million dollars in the fight against cystic fibrosis since its inception in 1993. Courtesy of Gunnar Esiason Courtesy of Gunnar Esiason. And the patient experience is a powerful one.
Cystic Fibrosis (CF) is a fatal and progressive genetic disorder that affects the lungs and pancreas. It results in persistent lung infections--due to production of thick mucous--which also impair ...
Sep 12, 2017 · A Conversation with Gunnar Esiason. Editor September 12, 2017. Gunnar Esiason is the son of retired American NFL quarterback, Norman (Boomer) Esiason. He is twenty-six years old and living with cystic fibrosis. He is currently the director of the patient advocate program at the Boomer Esiason Foundation in Garden City, New York.
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Gunnar Esiason is a cystic fibrosis and rare disease patient leader, who is passionate about early-stage drug development, patient empowerment and health policy. He is the head of patient ...
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The Boomer Esiason Foundation funds CF Centers and Programs as part of its mission and will continue to invest in the future of the cystic fibrosis community. For almost 20 years… Jim Regan, President & CEO, Digital Federal Credit Union, and BEF board member since 2018, has been an integral partner of the Foundation.
Nov 12, 2021 · When you look at market penetration for drugs outside cystic fibrosis, you’d be very hard pressed to find something greater than 50% penetration, let alone close to 90%. That’s remarkable unto itself, and points to the respect that our payors have for the benefits of this class of drugs. (Remember, they will benefit even more as the CFTR ...
