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  1. Jan 31, 2022 · 31 January 2022. Today is the launch of the official Rare Disease Day 2022 video in over 40 languages! This video kicks off the international patient-led campaign and shines a light on the diverse community of over 300 million people living with a rare disease. Watch it now in:

  2. At St. Jude, we’re dedicated to cutting-edge research and treatment methods for rare and life-threatening pediatric diseases. Join us on Rare Disease Day, February 29, 2024, to spread awareness of those rare diseases and support our patients and their families. Donate Now.

  3. Apr 23, 2024 · On Feb. 29, 2024 — the rarest day of the year — patients, clinicians, researchers, drug developers and advocates traveled to the NIH main campus or tuned in to NIH VideoCast for Rare Disease Day (RDD) at NIH. More than 2,000 people attended RDD at NIH.

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