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We take your privacy very seriously. Subject to the Terms and Conditions above, NORD will never sell or disclose your personal information. Join NORD on Rare Disease Day! Discover impactful sessions, engaging speakers, and community events. Raise awareness, foster connections, and make a difference. Be a part of the rare disease community’s ...
- Events
Events from May 16 – April 21, 2025 – National Organization...
- Rare Disease Day
Rare Disease Day is a global initiative to raise awareness...
- Events
Jan 7, 2016 · 11th Annual Rare Disease Symposium. 29 Feb 2024 to 1 Mar 2024 Birmingham, AL, United States. Register to attend the 11th Annual Rare Disease Symposium on Feb. 29 – March 1! This is a hybrid event, ... 14. Internationaler Tag der Seltenen Krankheiten in der Schweiz. 2 Mar 2024 Bern, Switzerland.
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Feb 28, 2024 · In the run up to Rare Disease Day 2023 on 31 January at 5.30 CET, we hosted a webinar with guest speakers and medical experts…. EURORDIS has received funding for this website under an operating grant from the European Union’s Health Programme (2021-2027). Views and opinions expressed on this website are however those of the author (s) only ...
Apr 23, 2024 · On Feb. 29, 2024 — the rarest day of the year — patients, clinicians, researchers, drug developers and advocates traveled to the NIH main campus or tuned in to NIH VideoCast for Rare Disease Day (RDD) at NIH. More than 2,000 people attended RDD at NIH.
The USA joined Rare Disease Day in 2009, making the campaign a truly international affair. Diverse events and campaigns have been organised ever since then, and in 2013 President Barack Obama sent a letter proclaiming his support of the day. Rare Disease 2020 saw a full programme of events and activities across the US aimed at raising awareness ...
