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Mar 13, 2021 · The 32-year-old has spinal muscular atrophy (SMA) which means she relies on a wheelchair and carers to help her with day to day life. Her Instagram started off as a generic page to help show basic snapshots of her life like many other accounts on on the platform.
Electric wheelchair-user Tess, who has spinal muscular atrophy (SMA), has worked on social marketing campaigns for the likes of Boohoo and Pretty Little Thing, as well as various make-up brands.
- Tess Daly
- Eddie Ndopu
- Samantha Renke
- Luke Sam Sowden
- Rikki Poynter
- Shane Burcaw
- Lauren “Lolo” Spencer
- Daniel M Jones
Tess Daly (not the Strictly presenter) is a beauty and fashion influencer with more than 200,000 Instagram followers. The 32-year-old from Sheffield lives with spinal muscular atrophy (SMA) type 2 and relies on using a wheelchair and support from carers for day-to-day living. Her Instagram started as a generic page to help show basic snapshots of h...
Eddie Ndopu is an award-winning, internationally acclaimed activist and humanitarian from South Africa. Diagnosed with SMA at age two and given only five years to live, he has gone on to become a beacon of hope and possibility for people with disabilities around the world. He holds a Master’s in Public Policy from Oxford University and is currently...
Samantha Renke is a broadcaster, actress, columnist, author, podcast host, speaker, consultant and disability activist. She was born with osteogenesis imperfecta (brittle bones disease) and she has broken her bones 200 times. She was named the third most influential disabled person in The Shaw Trust’s Power 100 list of 2020, nominated as Campaigner...
Luke Sam Sowden is a visually impaired blogger and social media influencer from Bradford. He uses his online platforms to share his experiences of living with sight loss and writes reviews of health and beauty products. He has a hereditary eye condition called Retinitis Pigmentosa, which means he suffers from tunnel vision and he uses a red cane to...
Rikki Poynter is a deaf content creator, writer, accessibility consultant, and public speaker. She started her YouTube career in July 2010 as a makeup vlogger until her shift to more educational and lifestyle content in late 2013. She is best known for her video, “Sh** Hearing People Say,” which now has more than 530,000 views, as well as her effor...
Shane Burcaw is a blogger, YouTuber, author and entrepreneur with SMA. This then led Shane to start his own non-profit organisation Laughing At My Nightmare, which supplies free adaptive equipment and assistive technology to people living with disabilities. Shane has also published two books titled Laughing At My Nightmare and Strangers Assume My G...
Lauren “Lolo” Spencer is a social media and video influencer, model and actor from California, USA. At age 14, she was diagnosed with amyotrophic lateral sclerosis, also known as ALS or Lou Gehrig’s disease. The degenerative neurological condition weakens the muscles. By 19, she was using a wheelchair to get around. ALS patients typically survive t...
Daniel M Jones is an international best-selling author and video influencer with an award-winning YouTube channel called The Aspie World, which is dedicated to autism awareness and understanding from an autistic person’s point of view. He has also created the first ever neurodiverse panel talking about ADHD and autism at VidCon US, which is the lar...
Twenty-nine year-old Tess Daly was diagnosed with Spinal Muscular Atrophy type 2 at just 18 months old and has been in a wheelchair ever sinceDespite struggling to lift her hand just one...
Feb 10, 2020 · It’s attached to the wheelchair and functions as a bionic arm to manipulate the limb; although designed for helping to feed yourself, Tess found it worked just as well when applying makeup – and it changed her life.
