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3 days ago · For Angelman children like Colin, who took his first steps before his fourth birthday — a milestone that was never guaranteed — the research and clinical trials are encouraging. While Kelly says they don’t know what his future holds, they are hopeful for a better quality of life for Colin and all individuals with Angelman syndrome.
Jun 7, 2024 · Colin Farrell appeared on Late Show With David Letterman last night to promote his upcoming movie, Fright Night, but also took a little time to give a shout out to CureAngelman.org and revealed that one of his sons has been diagnosed with Angelman Syndrome.
1 hour ago · Brittany Ramsey said her daughter is one of two children in Kentucky with the disease. Dayday was diagnosed with the disorder at one. According to the Angelman Syndrome Foundation, it’s a rare neuro-genetic disorder that affects approximately one in 15,000 people. Dayday does not walk, does not speak, and cannot live independently.
Jun 20, 2024 · The ASF and FAST recently joined other rare disease groups to ask the Food and Drug Administration (FDA) to establish a Rare Disease Center of Excellence in the Agriculture, Rural Development, Food and Drug Administration and Related Agencies Fiscal Year 2025 appropriations bill.
Jun 4, 2024 · The Foundation for Angelman Syndrome Therapeutics (FAST) announced the establishment of an associated drug development accelerator called AS²Bio Inc. The company is creating a drug development ecosystem to bring transformative therapeutics to those living with Angelman syndrome (AS).
Jun 12, 2024 · Angelman syndrome is a genetic disorder causing delays in development and neurological issues or symptoms. These may include problems with speech, balance and walking. In some cases, Angelman syndrome can be associated with seizures.
4 days ago · Taylor, who is three years older than Colin, was born with Angelman syndrome, a rare neurogenetic disorder that can lead to delayed development and intellectual disabilities. It has some...
