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The Carter Centers for brain research in holoprosencephaly and Related brain malformations. Creating a worldwide network of scientists, healthcare professionals and families dedicated to holoprosencephaly research, education and practice.
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The Carter Centers for Brain Research in Holoprosencephaly (CCBRH) represent the most concentrated study of holoprosencephaly in the world. The centers were created to gather, store, organize, analyze and share information about HPE, but most importantly, to help families find hope.
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This captivating and heartwarming video from The Carter Centers for Brain Research in Holoprosencephaly and Related Malformations explores the nature of holoprosencephaly (HPE), the wide range of its manifestations, its cause, treatment, and probable outcomes.
The Carter Centers for Brain Research in Holoprosencephaly provide a variety of services to families (education, radiology evaluations, international registries, parent-to-parent networks, etc.). Any parent may choose to be involved in just one program or be involved all programs.
Levey et al. present an updated review of common medical problems in children with HPE and the appropriate management, based on previous studies and recent data and observations from the database of the Carter Centers for Brain Research in Holoprosencephaly and Related Malformations.