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Rare Disease Day is observed every year on 28 February (or 29 in leap years)—the rarest day of the year. Rare Disease Day was set up and is coordinated by EURORDIS and 65+ national alliance patient organisation partners. Rare Disease Day provides an energy and focal point that enables rare diseases advocacy work to progress on the local ...
Are you looking for ways to join the global movement of raising awareness and advocacy for rare diseases? Visit the Rare Disease Day Tools & Resources page to find downloadable materials, social media graphics, educational webinars, and more. Learn how you can make a difference for the rare disease community.
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Apr 23, 2024 · On Feb. 29, 2024 — the rarest day of the year — patients, clinicians, researchers, drug developers and advocates traveled to the NIH main campus or tuned in to NIH VideoCast for Rare Disease Day (RDD) at NIH. More than 2,000 people attended RDD at NIH.
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Feb 28, 2024 · The goal of Rare Disease Day is to raise awareness about rare diseases and their impact on our society. Rare Disease Day always occurs on the last day of February. This year, it falls on the rarest day – Feb. 29.
At St. Jude, we’re dedicated to cutting-edge research and treatment methods for rare and life-threatening pediatric diseases. Join us on Rare Disease Day, February 29, 2024, to spread awareness of those rare diseases and support our patients and their families. Donate Now.
Apr 6, 2022 · On March 4, 2022, FDA joined the global observance of Rare Disease Day, which was created to raise awareness about the 7,000 known rare diseases, many of which have no treatment.
Jan 31, 2022 · 31 January 2022. Today is the launch of the official Rare Disease Day 2022 video in over 40 languages! This video kicks off the international patient-led campaign and shines a light on the diverse community of over 300 million people living with a rare disease. Watch it now in:
